As a Cooperative organisation whose sole purpose is to collate data for this control group, and whose purpose is not to enrich anyone, we are exempt from General Data Protection Regulation (GDPR) as per guidance received from the Information Commissioner's Office (ICO).

Let me be clear: we are not sharing any individual’s medical information or any other personal information for that matter. Aggregated information will be compiled for independent researchers and this will be overseen by our ethics panel.

As a Cooperative organisation we are managed by our members whose data we hold, and they will decide how their data is used.