As a Cooperative organisation whose sole purpose is to collate data for this control group, and whose purpose is not to enrich anyone, we are exempt from General Data Protection Regulation (GDPR) as per guidance received from the Information Commissioner's Office (ICO).
Let me be clear: we are not sharing any individual’s medical information or any other personal information for that matter. Aggregated information will be compiled for independent researchers and this will be overseen by our ethics panel.
As a Cooperative organisation we are managed by our members whose data we hold, and they will decide how their data is used.
Firstly, we try to ensure that any data required for the participant record excludes personally identifiable information. For example, we don't ask for full date of birth.
The only personally identifiable data that we ask for is an email address, which is immediately encoded and stored in a separate repository to the participant record. Therefore, the participant record never has any personally identifiable data attributed to it directly.
At present, we have a trusted and well respected health scientist analysing our winter questionnaire data for us. This will be snapshot of the 2021/2022 winter period. Further data will be gathered and analysed over the years.
No, we will not sell your data to the government.
We will never sell your data and we are certainly not, and never will, use it to reveal the vaccine-free to the government. They already know who we all are by our doctor records and by their profiling on social media.
