How are we working to improve health outcomes?
What data are we collecting and how will it be used?
How are we helping to ensure you have informed consent?
How are we giving back to our worldwide community?
What happens when you join us
What does it mean to join the Control Group?
What is the Health Card
Emergency (ICE) card that can also hold your advanced medical decisions.
What is the Control Group Cooperative
How did we start and what do we do?
Cookies and Consent
We use essential cookies.
Various podcasters interview the Control Group founders.
During the last few years, many of us have learned a lot more about health, science and medicine than we knew before, and consequently, we have become more interested in what keeps us healthy, as well as understanding that there are many more that just pharmaceutical treatments that can make us better when we do succumb to dis-ease.
The medical system has a vested interest in us remaining medically uneducated so they can sell us profitable cures, which creates inevitable bias against natural treatments, less profitable pharmaceuticals and unincentivized medications that may be safe and efficacious.
This is why we believe it is vital that anyone who wants to take ownership of their health, learns as much as they can about the way their body works and the effects of nutrition, the environment and our emotional wellbeing on our health outcomes.
We know that we are asking a lot from you when you enter your health data into our system, but we hope that it will be an opportunity to tune in to your body and notice the way you are treating it and how it is responding.
It is through taking ownership of our health individually and as a worldwide community, that we will become stronger, healthier and truly sovereign.
Your anonymized data forms the international Control Group database. By contributing your data to this important pool of health information, you are helping us to build an independent source of information about our health and the impact we are having on it.
What is different about our data?
We are a worldwide, platform cooperative funded by its own members, which means there is a genuine interest in unbiased outcomes.
We are not funded by corporations looking to approve or make profit from a product.
When any researchers use our data to write papers and reports, we will ensure the (highly anonymized) source data is available for review – which will ensure results can be verified.
What information do we collect?
Our participants enter information about their height, weight, age, food styles, blood group, previous health conditions and vaccinations taken, then each month we ask them to log any new health conditions, treatments, or procedures. Females can log changes to their monthly cycle and record pregnancies and their outcomes.
This creates a massive pool of health information from people of all ages that can be studied to look for trends in health, disease, treatment outcomes and environmental impact.
The data is self-reported and our system allows users to record the things they do to stay healthy, as well as the treatments they take or use when they are unwell.
What will happen to the results?
Scientists, doctors and researchers will be able to access your anonymized health outcomes so they can publish reports and papers on it. This data will not have personal contact or identifying information attached to it.
Copies of published reports will be made available to everyone in the Research section.
As we develop this system, we will be building a dashboard analysis tool that will allow all users of the database to be able to view a number of data points for themselves.
We believe it is important that we all re-connect with our human bodies; what makes them work and what impedes them. Our health outcomes, recorded and analysed outside of a financially incentivized, biased system, will help us to look at what the life we live, is doing to us all.
Will you sell my data?
No, we will not sell your data.
How are we Ensuring Data Privacy?
Firstly, we try to ensure that any data required for the participant record excludes personally identifiable information. For example, we don't ask for full date of birth.
The only personally identifiable data that we ask for is an email address, which is immediately encoded and stored in a separate repository to the participant record. Therefore, the participant record never has any personally identifiable data attributed to it directly.
When Associates join we do need to obtain a delivery address for their ID Cards and this information is again stored in its own repository.
All data transfer is completed using HTTPS protocol, ensuring it is protected while in transit and the data is always stored in an encrypted state. Further double encryption is used for passwords.
All membership IDs are generated randomly using very large numbers so as to avoid sequentially numbered participants, which again helps protect our data.
Furthermore, layers of protection are employed across our platform to protect our service from denial of service and hacking attempts.
The data is owned and managed by The Control Group Cooperative Ltd, a legal entity registered and protected by UK law, which is owned by its members. The cooperative business structure ensures that there are no shareholders, only stakeholders. With no shares to sell and no public record of who the stakeholders are, we can provide protection against acquisition from any large corporations who might otherwise seek to take possession of our data.
As a Cooperative organisation whose sole purpose is to collate data for this control group, and whose purpose is not to enrich anyone, we are exempt from General Data Protection Regulation (GDPR) as per guidance received from the Information Commissioner's Office (ICO).
Let me be clear: we are not sharing any individual’s medical information or any other personal information for that matter. Aggregated information will be compiled for independent researchers and this will be overseen by our ethics panel.
As a Cooperative organisation we are managed by our members whose data we hold, and they will decide how their data is used.
When we are given a choice, we base it on the information available to us at the time. However, more than ever before, we are learning that information from previously trusted sources is misrepresented, biased and sometimes, just completely wrong.
Many of us are finding this particularly true for the food we consume, the treatments prescribed to us and the new technologies around us. This is why we started the Control Group and why we are creating a resource of health outcome data that is completely independent, unbiased and backed by its source data.
Being a member of the Control Group Cooperative's health study is a really simple thing that you and your family can do each month that really will make a difference.
This is the data we will trust when we make health decisions for ourselves and our children. But it depends entirely on all of us to build a brand-new bank of information that tells the story of us. It takes trust to build trust, and that is what we are doing, together.
The Control Group community are people from all over the world, from different cultures, religions and geographical environments, but the one thing we all have in common, is an interest in how to stay healthy in a world of increasing toxicity.
As an organization, we want to give back to our community; to thank you for supporting us and trusting us as custodians of your data.
One of the most important ways that we give back, is by our weekly Sharing and Caring zooms, which provided vital connection for people when they were being discriminated against and feeling desperately lonely, and continues to provide a safe space for open conversation, a fantastic opportunity to find out what is happening in other countries and a caring and supportive, international community – many of whom have become firm friends.
We also run weekly online Community Events, featuring knowledgeable speakers on a wide range of topics; from natural health, to crypto and beyond. These are free to attend and a fantastic opportunity to learn and ask questions.
The Control Group also host a large number of Telegram groups that are a great starting point for finding out more about our amazing community and a brilliant way to start connecting with like-minded people.
You can also connect to us on Instagram, Facebook and Twitter. And our community doesn’t stop at individuals – we work hard to create relationships with other organisations in the UK and many other countries, who can provide information and support for our community.
We believe that a strong and loving community creates positive energy and unified power. By coming together, we are stronger.
What Happens When I Join
Anyone from anywhere, and any age can participate in our study. Adults over the age of 16 can create an account and add up to 8 household members to it (including themselves).
We need as many people as possible to contribute their health data on a regular basis, so we can build a reliable picture of what is happening to our health and how products, treatments and environments affect our outcomes.
Does it cost?
It's your choice!
Everyone member of the study can create and access a digital version of the vaccine study card and Health card.
You can order free, durable printed versions of your digital Study and Health cards for you and your family.*
If you decide to help fund this important study, then you can become an Associate member, which you can do at any point - and cancel at any point too.
Associates choose the level of funding they can afford, starting at a monthly subscription of just £6 (UK) and are sent a printed, plastic version of the membership card as a thank you.
How do I get started?
- Register your account and verify your email address.
- Each participant (or their guardian) answers basic health and body type questions as part of the registration process.
- You can add a photograph, which will be displayed on your digital card.
- Once you have entered your basic health information, you will be prompted to add any vaccinations, medical conditions, tests and procedures you have had - or you can simply say that you have had none of these.
- Finally, you can create your digital Vaccine Study Card, and/or (ICE: In Case of Emergency) Health Card, which can be displayed on your phone.
- If you choose to become a funding Associate (which you can choose to do later, if you prefer) you can set up your subscription and order your printed cards (postage & packaging is charged for your region).
What will I have to do, as a participant?
- Each month you will be reminded to enter any new health conditions, pregnancies, treatments, tests taken and other changes - if there is nothing to report, then you can simply click a nothing to report option.
You can add to your record at any point during the month too.
- You will be sent a newsletter each month with your reminder and this will also include information about any community events and support zooms on offer, as well as optional health surveys that you may wish to take part in.
What do I get from being a participant?
- Digital membership card for the Covid Vaccine Study
- Digital ICE Health Card
- Printed, plastic Covid Vaccine Study card (Associates only)
- Printed, plastic ICE Health card (Associates only)
- Downloadable certificate of participation endorsed by the World Council for Health
- Letter confirming participation, signed by a UK doctor
- Free Community Events
- Access to weekly Support Zooms with the founders
- Being part of a like-minded community
- Connections to other like-minded organisations
- Access to Discounts on a variety of health and wellbeing related products
- A place to record your health outcomes from any medications and treatments you have taken
- Knowing that you and your family are helping to build a new way of looking at health.
What else is there?
We are an organisation that is growing with its participants - and as your needs change, so we have evolved. We are still adding to our system and there are some great new services to come; including (but not limited to):
- A dashboard for participants to look at data outcomes for themselves.
- The ability to opt into special interest surveys from doctors, scientists and organisations working with us.
- A data warehouse for approved scientists and researchers to be able to easily analyse our (highly anonymised) data and easy access to all papers produced.
The Control Group Health Card
The Health card is an “In Case of Emergency” card that you keep on you at all times. If you are ever found unconscious or unable to communicate, the QR code can be scanned to show important information about you, your health and your advanced medical decisions.
The card displays your blood group (if known) and instructs whoever finds it to scan the QR code in an emergency.
You choose which information you would like to show on the QR page – for example:
- Your blood type
- Any allergies
- Medical conditions
- Advanced decisions you have made about things such as; blood transfusions, organ donation and treatments
- Emergency contacts
All members of the Control Group Cooperative can create a digital Health card and subscribing Associates can order a plastic, printed copy.
❌ You can disable the QR code if you lose the card, or no longer wish to use it.
👨👩👧👧 Cards can be created for you and your household.
✔️ Details should be reviewed regularly and updated as necessary.
If you lose your Health card
Because the Health card QR code can show your selected health information, it is important that if you lose it, or it is stolen, you login to your account and cancel the QR code.
- You can only REMOVE the card before you have requested it to be printed and posted
- If the card has gone to print, or been posted - or you have received it, then you can CANCEL the QR code and un-cancel it if you find it again.
See all about the cards under Get Cards in the Support section.
Advanced decisions are decisions you have made for a time in the future where you may lack capacity or be unable to communicate. Examples of such situations include being unconscious due to being involved in an accident, having a stroke or a brain injury or lacking capacity as a result of a condition such as dementia.
Advanced decisions can include any treatment or procedure that you wish to refuse. You cannot request a particular treatment, you can only refuse a specific treatment for a situation. It is a great idea to add any treatments and / or procedures you feel strongly about refusing to your Health Card. These will be displayed when the QR code on your Health Card is scanned in an emergency.
Please visit out WIKI page for more information regarding making a formal Advanced Directive or Living Will.
Control Group Cooperative plan to strengthen this feature of the Health Card in the future to make it as effective as possible, including creating links to other organisations to which you may belong, such as independent blood donor organisations. Please bear in mind that the advanced decision feature is not a legal Advanced Directive or Living Will document.
About the Control Group Cooperative
The Control Group Cooperative Ltd is membership organization.
The direction of our organisation is steered by our generous funding Associates and the needs our participants, who believe in personal health sovereignty and transparent, unbiased science.
A future where we are healthy by choice. Where every one of us has access to information about the food we eat, the treatments we use and the environment we live in; information that is clear, truthful and not dictated by financial gain.
A future where health and happiness are abundant and where open debate is encouraged, to ensure existing viewpoints are reevaluated and new ideas and information are available for consideration.
Our future is happy, healthy and free - for us, our children and generations to come.
How did we get started?
The Control Group was set up to record the self-reported, anonymized, long-term health outcomes of people who voluntarily chose not to take any Covid-19 injection. We have since expanded to include our own comparative group of people who took any number of Covid injections.
Our database is designed in such a way that we could provide a voluntary control group for: future vaccination programs, existing drugs and health supplements and environmental factors.
How is the Control Group Cooperative funded?
Control Group is a cooperative and as such, is funded by its participants - not by universities, products or pharmaceutical giants, which means we are, and will remain completely independent.
Who can join the Control Group study?
Anyone in any country can participate in the Control Group study. It is never too late to join - we plan to record the health outcomes of several generations.
Where do our participants come from?
Our participants come from all over the world; from a diverse range of socio-economic backgrounds, geographical environments and cultures. Because of this, our data will show if there are similar outcomes from treatments, medications or therapies across different backgrounds.
The map below shows the current spread and density of our participants.
Cooperatives, or co-ops, are organizations owned and operated by their members, who work together to meet their common needs and aspirations. These unique enterprises span various sectors, from agriculture and finance to housing and healthcare, and their principles and values promote equality, participation, and sustainability.
One of the fundamental principles of cooperatives is democratic control. Each member has an equal say in the decision-making process, regardless of their investment or stake in the cooperative. This democratic structure not only empowers individuals but also ensures that the interests of the community take precedence over profit maximization. By pooling resources, knowledge, and skills, cooperatives enable members to achieve outcomes that would be challenging or impossible to accomplish individually.
Cooperatives also prioritize the well-being of their members and the communities they serve. Rather than pursuing short-term gains, they focus on long-term sustainability and fair distribution of benefits. Co-ops aim to bring value and benefit to their members and their community, not solely focusing on making a profit. This is because they are owned by the people closest to the organization and not distant investors who are only interested in financial gains. Whether it's fair prices for farmers, affordable housing for residents, or accessible healthcare for patients, cooperatives prioritize the common good over individual profit. This approach fosters economic resilience, reduces inequality, and builds stronger, more connected communities.
Co-ops around the world share the same cooperative principles and values, which were implemented by the International Co-operative Alliance (1995) to support the cooperative movement internationally.
What are the co-operative principles?
There are seven principles that outline how a co-operative operates:
- A co-op is owned and controlled by its members and exists to benefit its members and wider community.
- Every member has an equal say due to the democratic nature of the co-op.
- Each co-op member contributes in some way. Working for the co-op, investing in it or by purchasing products or subscriptions.
- A co-operative is an independent organization with no one person in control.
- Co-operatives offer education and information to all involved to develop and promote the benefits of co-operation.
- Co-operatives work and support other co-ops.
- A co-op supports the communities it works with.
- (International Co-operative Alliance, 1995 available at: https://ica.coop/en/whats-co-op/co-operative-identity-values-principles)
What is a platform co-operative?
Control Group Cooperative Ltd is a multi-stakeholder platform co-operative. All that means is that it is a co-operative in structure which uses a digital platform (website) to operate. It permits statutory members who are required to attend meetings to do so via the internet rather than being physically present, meaning members can join the co-operative from all over the world. A platform co-operative structure supports the Control Group to increase the number and engagement of our members and participants, which is vital for us to achieve our goals.
The members of a platform co-operative own the platform, giving them sovereignty over the code. This also means the co-operative members have control over the privacy of the users and can provide them the transparency over what happens to the data on the platform.
What is Control Group’s membership structure?
The Control Group Cooperative Ltd has multiple membership levels.
Statutory members are members of the co-operative who are responsible for electing a board of directors and voting on important decisions that guide the direction of the business and will have a significant impact on the financial resources of the co-operative. They act as guarantors of the co-operative and are expected to attend meetings, be involved in the day to day running of the business and contribute financially by working for or investing in the co-operative.
Partner members are statutory members who work as part of the operational team at the Control Group.
Non-statutory members of the Control Group Cooperative include Associates, Participants, Allies and Donors and are not required or expected to contribute to the same level as statutory members are.
Associate members are individuals who choose to subscribe to the Control Group Cooperative and help provide the essential funding for the long-term sustainability of the co-operative. Associate members are encouraged to contribute to the Control Group Cooperative community, and provide input into future projects and the overall objectives of the organization. Associates are invited to join periodic steering meetings via zoom with the directors and statutory members of the Control Group.
Participants are individuals who join the Control Group and choose to contribute to the co-operative by inputting health information, which is fundamentally important for the co-operatives aims and objectives of ensuring large quantities of data is collected from around the world for independent analysis. Participant members of the co-operative are encouraged to get actively involved in the co-operative’s online community.
Allies are organizations whose aims and objectives align with those of the Control Group Cooperative Ltd. Control Group aim to support and collaborate with allies to accomplish shared goals.
Donors are individuals or organizations who financially donate to the Control Group. Donors are not necessarily members of the cooperative and they do not hold any influence over the running or the direction of the organization.
In research of any kind it is vital to have both an experimental group and a control group.
The experimental group receive the treatment the researcher is interested in measuring the effectiveness of. The control group does not receive the treatment.
The reason for this is so that the researchers can determine if the treatment has an impact on the measure of experiment (for example, a reduction in serious infection as well as the incidence of adverse reactions in those given the treatment).
A control group serves as a baseline comparison to the experimental group, whereby the researchers can reliably compare the measured results of the treatment cohort with the control.
Failure to provide a strong control group may cause a study to be considered invalid, because it would not allow the researchers to eliminate or attribute effects that might have occurred within the experimental group as being due to the treatments or incidental occurrence.
Cookies and Consent
The Control Group website (accessed via www.controlgroup.coop and www.vaxcontrolgroup.com) is our own proprietary system that we have designed and built; therefore, we have complete control over the cookies that are used - these are described below. This is where you login to enter your health information.
The WIKI (www.vcgwiki.com) is our information blog, which you do not log into and does not require you to enter any information. This is an off-the-shelf system, which uses plugins and add-ons and has its own cookies, etc..., which we have no control over.
We use Zoom for all our Community Events - again this is an off-the-shelf and we have no control over any cookies it may use.
Control Group website data portal - Cookie Consent and Usage
Cookie consent is required in order to keep your session alive, which is necessary for the functioning of the Control Group website.
We do not use any data harvesting or tracking cookies such as google analytics or Facebook dots.
Our secure cookie usage is entirely in line with the original intention of cookie usage, which is to facilitate your interaction with our website and avoid you having to constantly provide security credentials.
The cookie is set to expire when you close down your browser, it will therefore remain in place until you do so, or you click to logout.
Interviews with the founders
James Freeman, TNT Radio:
World Council for Health, General Assemble presentation: https://worldcouncilforhealth.org/multimedia/introducing-the-control-group-health-sovereignty-with-diny-rachael/
Patrick Henningsen, TNT Radio: https://tntradiolive.podbean.com/e/diny-fielder-van-kleeff-rachael-marshall-on-patrick-henningsen-show-11-february-2023/
Peter Mcilvenna, Hearts Of Oak: https://www.bitchute.com/video/T6r5zpED7jLM/